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Guidance for starting an ICES project
2017 Patient Engagement Symposium
- This symposium helped attendees to gain an understanding of Patient Engagement in Health Research and be introduced to resources and strategies to effectively engage and partner with patients and families
Engaging and Partnering with patients and families in Health Research
Patient/Family Engagement-Parent and Researcher Perspectives
Tools and Resources for Patient Engagement
Families as Partners in Research
Patient Engagement Tools
CIHR Strategy for Patient Oriented Research Patient Engagement Framework.
OSSU Patient Engagement Resource guide
Canadian Foundation for Healthcare Improvement (CFHI) Patient Engagement Resource Hub
funded by the National Institute for Health Research (NIHR) to support public involvement in NHS, public health and social care research provid
es excellent resources including briefing notes on patient engagement.
James Lind Alliance
for priority setting partnerships provides a guidebook and templates.
for training patient engagement researchers and other useful resources.
Patient Oriented Research Curriculum in Child Health
) - a collaborative effort involving patients and families, health care professionals, clinician-scientists, and educational researchers from CCHCSP, the Ontario Child Health Support Unit, the Hospital for Sick Children, the BC SUPPORT Unit, Child Bright SPOR Network and the Ottawa Methods Centre. The overarching goal of PORCCH is to enhance skills and build capacity in patient oriented research in child health.
Modules coming soon.
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