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Resources 
 
Research Tools
2017 Patient Engagement Symposium - This symposium helped attendees to gain an understanding of Patient Engagement in Health Research and be introduced to resources and strategies to effectively engage and partner with patients and families.
Patient Engagement Tools
Patient Oriented Research Curriculum in Child Health (PORCCH) 
  • A collaborative effort involving patients and families, health care professionals, clinician-scientists, and educational researchers from CCHCSP, the Ontario Child Health Support Unit, the Hospital for Sick Children, the BC SUPPORT Unit, Child Bright SPOR Network and the Ottawa Methods Centre.  The overarching goal of PORCCH is to enhance skills and build capacity in patient oriented research in child health.
The Patient-Oriented Research Curriculum in Child Health (PORCCH) is now available online!

PORCCH is a series of interactive e-learning modules designed for patients and families, researchers, clinicians, trainees, and anyone interested in learning more about patient-oriented research in child health.

All modules are free to access. All you have to do is create an account, and then you can access the modules at any time and in any place (Internet access required). For each module you complete, you will receive a certificate of completion.
 
To access the modules, visit www.porcch.ca

Current PORCCH modules:

Research 101, Part 1: What is Health Research and Who is Involved?
Research 101 is primarily designed for patients and families. Part 1 provides an overview of patient-oriented research and the key players involved.

Research 101, Part 2: Timeline of a Research Study
The second part of Research 101 (also primarily for patients and families) describes the stages of a research study, how patients and families can get involved in each stage, and the challenges and benefits of patient-oriented child health research.

Patient Engagement 101, Part 1: Foundations of Patient Engagement
Patient Engagement 101 is primarily designed for clinicians, researchers, and trainees. It may also be of interest to patients and families after they complete Research 101. This module provides a summary of key concepts in effective patient and family engagement in child health research.

Patient Engagement 101, Part 2: Patient Engagement in Practice
The second part of Patient Engagement 101 (also primarily for clinicians, researchers, and trainees) covers practical aspects of patient and family engagement in health research, various methods of patient engagement, and some challenges of patient engagement.

Research Ethics 101 (coming soon)
This module will provide a general introduction to research ethics and highlight some ethical issues in patient-oriented research. It is primarily intended for patients and families but can be taken by anyone interested in learning more about the topic.

Click here for social media posts to share PORCCH within your network. If you have any questions about PORCCH, please email porcch.support@sickkids.ca.