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Patient and Family Engagement Support

• Patient and Family Engagement in Research
 
o Raise Awareness of patient-oriented research in child health through symposia, seminars, workshops, webinars
o Training in patient-oriented research via PORCCH (patient-oriented research curriculum in child health)
         * Research 101 (parts 1 and 2) developed for patients and families
         * Patient Engagement 101 (parts 1 and 2) developed for researchers
         * Methods of patient engagement
o Consultation on Patient and Family Engagement - incorporation of the patient and family perspective in child health research via
         * Protocol review
         * Grant review
         * Document review
         * Identification of patient partners
o Leadership in patient-oriented research in child health research
         * Family Leader Coordinator (Research) – CHEO
         * Patient & Family Engagement Coordinator (Research) – SickKids
         * Family Leader Program
         * Family Advisory Networks