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Patient and Family Engagement

-Raising Awareness of Patient-Oriented Research in Child Health via seminars and webinars
-Training in Patient-Oriented Research in Child Health via the PORCCH Curriculum:
  • Research 101 (parts 1 and 2) developed for patients and families
  • Patient Engagement 101 (parts 1 and 2) developed for researchers
-Consultation on Patient and Family Engagement - incorporation of the patient and family perspective in child health research via grant review, document review, and matching patient partners with researchers
 
-Leadership in Patient-Oriented Research in Child Health:
  • Family Leader Coordinator (Research) – CHEO
  • Patient & Family Engagement Coordinator (Research) – SickKids
  • Family Leader Program
  • Family Advisory Networks