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ADVANCING COLLABORATIVE
TRANSFORMATION IN ONTARIO (ACTION) in Child Health Research Symposium
 
 
 
 
 
 
 
 
 
 
 
VIRTUAL CONFERENCE 
Register Here 
Registration will close on September 30, 2022
 
 
What is the ACTION in Child Health Research Symposium?

The inclusion of the patient and family perspective in planning and doing child health research improves research quality, relevance, usefulness, and dissemination. Over the past 20 years, with the support of engaged patients, families, researchers, institutions, and initiatives such as the CIHR Strategy for Patient-Oriented Research (SPOR), advances on how to include the patient voice in all areas of research have been made. Meaningful engagement comes from the partnerships formed between researchers, patients and families at the study team level. However, the work of advancing patient and family engagement cannot only depend on research teams. The ACTION in Child Health Research Symposium is an inaugural gathering of patients, families, caregivers, researchers, and administrators, who wish to work together to improve the practice of patient engagement in research in Ontario. The symposium will be an annual conference to advance the practice of patient engagement by learning from those doing this work and developing initiatives to improve patient engagement in child health research in Ontario and beyond.
 
Using the Experience of Partnering in Child Health Research to Improve Practice 
 
Symposium Objectives:
    • Highlight the value of patient engagement in child health research from multiple perspectives (patient, family caregiver, researchers, clinicians, support staff and hospital administrators)
    • Provide researchers, patient/family advisors, and trainees the opportunity to engage in hands-on engagement through simulation activities
    • Identify current challenges in patient engagement practices/activities
    • Advance the practice of patient-oriented research through the co-creation of practical tools, guidance documents, and proposed solutions for current challenges in patient engagement practices/activities
    By attending this workshop, participants will:
    • Have the opportunity to learn from leaders in the field of patient engagement
    • Have the opportunity to network and connect with fellow patient and family caregiver advisors, clinicians, researchers, and patient engagement specialists, looking to improve the practice of patient-oriented research and patient engagement in child health research 
    • Share their lived experience with patient engagement to advance the practice and contribute to work on policy briefs, academic publications, best practices, and infographics emerging from conference discussions
    Who should attend?
    • Persons interested in patient-oriented research and patient and family engagement in child health research
    • Persons with experience in patient and family engagement in child health research (e.g.  youth, parents, caregivers, clinicians, researchers, research trainees, early career researchers, hospital administrators and engagement professionals)
    • Persons interested in sharing their experiences of patient engagement and/or patient-oriented research and networking with others with similar experiences
    • Research teams (patients, families, researchers and support staff) who have worked together are recommended to register as a group

    What will attendees get to do?
    • Persons interested in patient-oriented research and patient and family engagement in child health research
    • Persons with experience in patient and family engagement in child health research (e.g.  youth, parents, caregivers, clinicians, researchers, research trainees, early career researchers, hospital administrators and engagement professionals)
    • Persons interested in sharing their experiences of patient engagement and/or patient-oriented research and networking with others with similar experiences
    • Research teams (patients, families, researchers and support staff) who have worked together are recommended to register as a group
    • Participate in a full day workshop either in-person (at the SickKids Research Institute) or over Zoom on Saturday, October 22, from 10am-4pm 
    • Engage in interactive engagement activities that will demonstrate the value and ongoing challenges with engaging patients and families in research 
    • Contribute to small and large group discussions to share lived experiences, identify current challenges in patient engagement practices/activities and propose solutions (Proposed discussion topics include, funding and support, sustainability, engaging youth, the potential of technology and social media for patient engagement)  
    • Co-design practical tools, guidance documents, and solutions to tackle current challenges in patient engagement

    What will the day look like?
     
     9:30 – 10:00
     Registration
    Virtual attendees will have the option to log in and watch video reels and network online via chat. 
     10:00 – 10:10  Welcome & Agenda
     10:10 – 11:00
     Keynote Address
    Sue Robins
    Author of Ducks in a Row: Healthcare Reimagined 
    "Patient Engagement For The Win" 
     11:00 - 11:15  15 Minute Break
     11:15 – 12:35
    An interactive facilitated discussion 
    The Current State of Patient Engagement: A view from the field 
     12:35 - 13:30
     LUNCH
    All attendees will have access to optional networking and knowledge-sharing activities
     13:30 – 14:00
    Introduction to small group discussions
    How to create actionable change
     14:00 - 14:30
     Breakout Groups
    Part 1: Focusing on a solvable problem
     14:30 - 14:40  15 Minute Break
      14:40 - 15:30
     Breakout Groups
    Part 2: What do we need to solve the problem?
     15:30 – 16:00  Sharing Findings & Wrap-Up
     16:00-16:30  Open virtual networking
     
    How much does it cost?
    The symposium is free.  There are no costs to attend. A limited number of accommodation support bursaries are available for patients and families to facilitate attendance at the symposium. Bursaries will cover costs for childcare, eldercare, nursing supports or other support requirements. Please indicate your requirements when completing your application.   
     
    Attendance capacity for this conference is limited, so complete your application of interest early! Your submission of interest will be reviewed upon receipt by patients, family caregivers and symposium staff, and you will be informed via email no later than October 7th, that your slot is confirmed.


    Register Here 
    Registration will close on September 30, 2022
     
    This event is sponsored by: