Professional Learning, Courses and Podcasts

PORRCH:

https://porcch.ca/

CIHR Patient Engagement:

https://cihr-irsc.gc.ca/e/27297.html

CanChild:

https://www.canchild.ca/en/research-in-practice/family-engagement-program/fer-course

Holland Bloorview Family as Faculty:

https://hollandbloorview.ca/get-involved-give/family-leadership-program/family-faculty-program

Podcasts

As per Usual:

https://asperusual.substack.com/

Matters of Engagement:

https://mattersofengagement.com/

Social Media

Youth in Research IG:

https://www.instagram.com/youth_in_research/?hl=en

Parents Partnering in Research Facebook Group:

https://www.facebook.com/groups/716669688375558/

Newsletters

FER Alumni Community:

https://canchild.ca/research-in-practice/family-engagement-program/family-engagement-community/

Guidebook

CHEO RI Patient Engagement:

2024 Patient Engagement Guidebook Final

Books

Wounded Storyteller Author Frank:

https://www.amazon.ca/Wounded-Storyteller-Illness-Ethics-Second/dp/022600497X

Beyond Sticky Notes:

https://www.beyondstickynotes.com/

Ducks in a Row Sue Robbins:

https://www.suerobins.com/books

Single Events

CHEO Internal Grants, Written review process (PDF):

https://drive.google.com/file/d/1iMJsuCIDkGdOPxREEGzyffpDAXKcXKVm/view?usp=sharing

https://youtu.be/qJC4aJrztT0

https://drive.google.com/file/d/1rH6aLJjvVALjbTuakiV8-3XUZU5SeEF-/view?usp=sharing

https://drive.google.com/file/d/1Fk6nYLy2O3YC4rkhHseAGt-hyYmGVd1D/view?usp=drive_link

Compensation & Recognition

Starting the Conversation Compensation Primer (FER Course) PDF:

https://pmc.ncbi.nlm.nih.gov/articles/PMC10795087/

https://drive.google.com/file/d/1U8JHGwFHiuLD8B_1ZoMioDIcJfACRQVJ/view?usp=sharing

https://drive.google.com/file/d/1HI9LqfkU0cH6WNmVLM3RCgAGlJHQcrPA/view?usp=sharing

https://cihr-irsc.gc.ca/e/27297.html

Trauma-Informed & Psychosocial Support

https://drive.google.com/file/d/19CR4PdlF1oe8iI6k0Gvob0KGlFMI3NOO/view?usp=drive_link

https://www.imperial.ac.uk/media/images/non-standard-dimensions/PPI-trauma-informed-guidance-2024-(1.pdf)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10951420/pdf/HEX-27-e14020.pdf

Evaluation & Impact

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8235891/

https://www.pwlepeerreview.ca/#/

https://academic.oup.com/jcag/article/7/2/177/7458099

FER in Basic Science & Innovation

https://drive.google.com/file/d/1Fk6nYLy2O3YC4rkhHseAGt-hyYmGVd1D/view?usp=drive_link

https://labpartners.ca/

https://www.ohri.ca/blueprint/documents/Policy%20Brief%20-%20Patient%20Engagement%20in%20Early%20Phase%20Clinical%20Trials.pdf

Patient Oriented Research

https://passerelle-nte.ca/en/